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What is Alpha-1?

"Alpha-1 Antitrypsin Deficiency (Alpha-1) is an inherited condition. Alpha-1 may result in serious lung disease in adults and/or liver disease at any age."

The World Health Organization (WHO) and the American Thoracic Society (ATS) recommend Alpha-1 testing for anyone with COPD, emphysema, chronic bronchitis, uncontrolled asthma, unexplained liver disease (including children), or panniculitis.


The Alpha-1 Foundation is the premier location for Alpha-1 info on the web. At the center of much research and education, the Foundation's website is comprehensive and reliable:

New Excursions section:
All New England Alphas and their circles of loved ones are invited to share: support group schedules and other info, featured events, Alpha-1 stories, exercise routines, handy tips, photos, recommended articles, personal writings, poems, jokes, and anything else I've missed.
Alpha groups beyond New England are welcome to send their website address for our Links page. My email address is petertc2@cox.com. Looking forward to years and years of service.
-Peter Cook
Jamestown, RI


  • Follow any links to original sources to make you own judgements
  • Check in with a support group
  • Be sure to consult your physician before acting on any material shared on this website

On a personal note, I've been way pleased with my infusions over at Newport Hospital. Sam Evans, my pulmonologist, is everything I hoped for in a specialist - keen intelligence, attentive, and patient-centered "like the old days". Everyone on the staff at the Infusion Center has been wonderful. They're knowledgeable, efficient, and caring. I've told them that it's their heart, their love that keeps me going. One of the nurses has a son the same age as my grandson. It's fun to compare photos and stories. I've been making paracord bracelets for the staff and other infusion patients, taking a bag of bracelets in every week. All the extra clippings from the bracelets are already going to our 6 year olds. The bracelets left over at the end of the year will be donated to Hasbro Children's Hospital's Giving Tree.


Noteworthy

Massachusetts Alpha-1 Support Group Meeting
Thursday, Dec 14, 7-9pm
Wingate Nursing Home
589 Highland Avenue
Needham, MA 02494

Speaker: Sheila Favazza, Support Group Leader
Topic: Foundation & Support Group Updates

Holiday dinner will be provided

For more information or to RSVP by Dec 12th, contact Support Group Leader:
Sheila Favazza at (978) 468-7704 or email: slfavazza@yahoo.com
Connecticut Nutmeggers Support Group Meeting
Saturday, December 16th, 12pm - 2:30pm
Hospital for Special Care
2150 Corbin Avenue
New Britain, CT 06053
Speaker: Stephanie Alderman, CRT, Outpatient Respiratory Therapist Hospital for Special Care
Topic: Life After Pulmonary Rehab

Holiday lunch will be provided.
For more information or to RSVP by Dec 11th, contact Support Group Leaders:
Faithe Petty at (860) 537-2668 or email at fspetty@sbcglobal.net.
or Chris Town at (203) 605-9150 or email at town.chris@sbcglobal.net
Informative Brochures
Each in "pdf" format. If you need the free PDF Reader, visit acrobat.adobe.com. Choose the free Acrobat Reader DC, not the Pro version.
Better and Better and Better

Fred Walsh, long-time AlphaNet coordinator for Mass. and RI and twin brother of the late John Walsh, is doing well after a double lung transplant. Here's Fred at this year's Escape to the Cape bike trek.